Meet our coordinator Amy Flege

Although the meetups have come and gone, we want to make sure you had a chance to meet all of our coordinators. It is never too late to let you know about the people that put so much time and effort into planning and organizing the events. And let me tell you, it was a lot of work!

Amy Flege was our coordinator for the Wisconsin Dells location. She did an amazing job and was busy all weekend long! From setting up, greeting families, making sure there were gluten free options, and communicating with the managers to ensure everything was set and ready. Amy worked really hard this weekend, and we want you to meet this incredible lady that gives so much to our Down syndrome community!



Before the meet up, I asked Amy, “What do you hope to have happen at this event?”

I cannot wait to meet more families and make new friends not just for me but for my family as well. How cool will it be for other people to see all our kiddos with Down syndrome walk in and have fun at the water park like anyone else, and at the same time advocate by doing so! So Cool!!!

The most important thing is to advocate for all our kids with Down syndrome and celebrate how lucky we are to have them in our lives!

Tell us a little bit about your Down syndrome journey. 

My Down syndrome journey actually started when I was born. My cousin Shelly is 5 years older than me and was born with Down syndrome. Growing up, I played with him just like any of my cousins. I thank God for him every day as he helped pave my way to our journey. 

My husband and I had no idea our little Mayson had Down syndrome until she was born. I had the crazy idea that I needed one more baby to make our family complete. Jayden, our son, was 11 and our daughter Rylee was 8. We didn’t have any testing done prenatally except for a having an ultrasound which showed everything looked great! The morning she was born was a whirlwind, as she came 15 minutes after we got to the birthing center (our car was still running in front of the building!) I took one look at her and I knew she had Down syndrome. It was OK though! We didn’t grieve.....Instead, we rejoiced in the perfect child we were given.

Can you tell us why this meet up was important to you? 

When you have a child with Down syndrome, it is such a great feeling to know you have others you can turn to. Whether it be questions or being able to share the milestones your child makes, or anything really. It is nice to know someone else "gets it"!. They become your second family.

Thank you Amy, we appreciate your hard work. You made the Wisconsin Dells meetup a success and we are thankful for you!

And you have seen Mayson, Amy's daughter, before. Her picture has been shared over 57,000 times!